TREND Community, RARE Revolution Magazine [https://www.rarerevolutionmagazine.com/] and RARE Youth Revolution are excited to announce a joint partnership to better understand the perspectives and needs of children and young adults living with rare disease. The RARE Youth Revolution platform, created by RARE Revolution Magazine, is amplifying young voices to empower a future generation of rare disease advocates and build a cross-condition youth community. In collaboration, TREND Community will a
Our newest Community Voice Report was made with the help of an awesome international community. Thank you to everyone who participated. TREND Community Voice - Chromosome 8p Disorders - June 2020 - V1.1 [https://drive.google.com/file/d/16I_AVr76kMfq1UuiI3o-H3wXfzisGy5N/view?usp=sharing] To read about the insights we uncovered, take a look at the CVR (totally free) here [https://drive.google.com/file/d/16I_AVr76kMfq1UuiI3o-H3wXfzisGy5N/view?usp=sharing] .
We are deeply saddened by the events of the past week, which are shining a spotlight once again on the racial injustice and systemic inequity prevalent amongst us. The tragic deaths of George Floyd and many others highlight the fact that we have much work to do in forging an inclusive society. There is no neutral ground in the matter; we can either be part of the problem or part of the solution. TREND chooses to be a part of the latter. Let us all join this movement, condemn racism, and wor