Philadelphia, Pa — September 22, 2021 — Today, TREND Community announced a collaboration with Takeda Pharmaceutical Company Limited ("Takeda") to advance their shared commitment to fighting for rare disease patient communities and bringing treatments to patients faster. By using TREND Community’s analytics engine, partners can make novel discoveries from patient- and caregiver-voice data that could positively impact initiatives in rare-disease focused areas. To this end, Takeda and TREND are la...
Click here to watch the video. [https://vimeo.com/546236461] Rare Disease Week on Capitol Hill officially starts today, and an incredible group of people will come together to drive progress and share their experiences with decision makers in the Washington, DC. The TREND team loves attending Rare Disease Week on Capitol Hill. Since we can't be there in person this year, we created a video starring some of our friends who attended last year's event along with TREND co-founder and CEO, Maria P...
When the quest for good clinical data is arduous, researchers and drug developers often contract tunnel vision. Certain endpoints are established and analysis begins, the more objective, the better. But as endpoints become more specific, and researchers arrive at a clearer understanding of what they are looking for, the landscape of information they are relying on shrinks. These blinders are a necessary part of getting a treatment through rigorous approval processes, but the more they block, the...
Over the last year, the kinds of clinical trials that precede a drug’s approval have been in the headlines more than ever. The way in which this technical process has become an international talking point is just another strange example of 2020 being unprecedented....
TREND Community, RARE Revolution Magazine and RARE Youth Revolution are excited to release findings from our first Rare Youth Survey. TREND and RARE Youth Revolution invited young people to answer a short survey about where they spend time online, specifically social media....
While research on sleep in rare disease is limited, TREND’s social listening is finding issues related to sleep to be the topic of many conversations in our rare disease communities....
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