In the wake of the COVID-19 crisis, different entities around the world are trying to minimize the amount of time it takes to get critical information. One promising endeavor is the COVID-19 Evidence Accelerator.
In February 2020, we presented a poster at NIH Day during Rare Disease Week on Capitol Hill titled: Insights From Closed Social Networks Advance the Understanding of Commonalities Between Rare Diseases.
Overview October 24, 2019 - TREND Community announces its newest Health Initiative, done in partnership with The Chion Foundation, and aimed at understanding how narcoleptic symptoms (including cataplexy) affect individuals with Prader-Willi Syndrome (PWS). This Health Initiative builds upon our August 2018 PWS Community Voice Report, in which we published that members of the PWS community frequently discuss issues related to sleep. TREND Community pursued this observation in partnership with