TREND Community, RARE Revolution Magazine and RARE Youth Revolution are excited to release findings from our first Rare Youth Survey. TREND and RARE Youth Revolution invited young people to answer a short survey about where they spend time online, specifically social media.
As of late, it has been hard for us to write about anything other than COVID-19. The pandemic is unprecedented, and for any healthcare-related organization the virus has had an impact. TREND is no exception. But we specialize in rare and underserved diseases, and even though the world is united in its quest for a COVID vaccine, we can’t forget the daily battle so many rare disease patients are facing along with the lack of attention their illnesses receive. This is especially true for ultra-rare