TREND Community is honored to present two posters at the World Orphan Drug Congress USA 2022 on July 11-13 in Boston, MA. These two posters* use real-world evidence to amplify the voices of the communities represented: Mapping the Rare Caregiver Journey in Hypoxic-Ischemic Encephalopathy Using Real-World Insights From Social Media [https://drive.google.com/file/d/1NgeqEipJtR3YUXfAIZMpf8X5-oFyCw52/view?usp=sharing] Using Real-World Evidence to Understand the Diagnostic Journey of People Living ...
TREND Community is excited to announce the launch of a "Sleep in Rare" Evidence Accelerator. Stay tuned for more details....
Dear Community, Despite some setbacks, disappointments, and unforeseen challenges, 2021 was a year of unprecedented growth for TREND. To kick-off off the year, we matched with Takeda Pharmaceutical Company Limited [https://www.takeda.com/] ("Takeda") through the MassChallenge HealthTech [https://masschallenge.org/programs-healthtech] program to advance Takeda’s shared commitment to fighting for rare disease patient communities and bringing treatments to patients faster. With generous sponsors...
Philadelphia, Pa — September 22, 2021 — Today, TREND Community announced a collaboration with Takeda Pharmaceutical Company Limited ("Takeda") to advance their shared commitment to fighting for rare disease patient communities and bringing treatments to patients faster. By using TREND Community’s analytics engine, partners can make novel discoveries from patient- and caregiver-voice data that could positively impact initiatives in rare-disease focused areas. To this end, Takeda and TREND are la...
Click here to watch the video. [https://vimeo.com/546236461] Rare Disease Week on Capitol Hill officially starts today, and an incredible group of people will come together to drive progress and share their experiences with decision makers in the Washington, DC. The TREND team loves attending Rare Disease Week on Capitol Hill. Since we can't be there in person this year, we created a video starring some of our friends who attended last year's event along with TREND co-founder and CEO, Maria P...
To use a screen reader, or access links, the text is copied below: 2020 was a transformative year for TREND, the disease communities we work with, and the world at large. The pandemic dealt us setbacks, but by focusing on patient communities and committing to uncovering more insights, TREND was able to come back stronger. Our focus is clearer than ever, and as we move further into 2021, it is important that we look back on all we have accomplished. Before the pandemic hit, we were lucky enough...
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