One thing that isn’t getting enough attention is how the pandemic is directly impacting the lives of rare disease patients. In many cases they are the people most at risk when it comes to the virus. Having or being treated for a rare disease leaves many of these patients immunocompromised....
This pandemic has shed light on many aspects of healthcare, and while much of it has been unsettling, one thing is becoming clear to the general public—the path to treatments is an extremely complex one. ...
At TREND, we help communities to turn their conversations into real-world evidence. To do this, we collaborate with those communities to distill their data into actionable insights. ...
Rare Disease Week on Capitol Hill officially started yesterday, and an incredible group of people arrived in Washington to drive progress and expand support. ...
For children and adults, the symptoms of rubella are not particularly serious, with 25% to 50% of people infected not experiencing any symptoms at all......
It is early January, and if you are like most people, you probably have some things you want to accomplish in 2020. Resolutions are easy to make and difficult to follow through on, and many of the people dealing with rare disease might have different obstacles when it comes to achieving success....
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