Health Initiative: The FA Patient Voice Initiative

Picture of Maria Picone
Maria Picone

Sponsored by and in partnership with the Friedreich’s Ataxia Research Alliance (, The TREND Community FA Patient Voice Initiative was launched to generate evidence for the Friedreich’s Ataxia (FA) community’s Patient-Focused Drug Development Meeting with FDA. Using social data analysis on FA-specific Facebook group conversations, TREND Community is  capturing the community’s perspectives on the questions posed by FDA.