How we work
We turn the conversations of people who have rare, chronic, and emerging diseases and their caregivers/care partners into actionable insights through our proprietary evidence-accelerator approach. Above all, we prioritize the privacy and trust of every community member.
Trusted, invite-only partnerships
We establish trusted, long-term partnerships with invite-only online communities formed organically by people affected by rare, chronic, and emerging diseases. To date, we have partnered with more than 50 communities spanning a range of disease states and symptoms.
See TREND’s impact on the Hypoxic Ischemic Encephalopathy (HIE) community »
We harness machine learning and natural language processing techniques with Krystie™, our proprietary analytics engine that captures the perspectives and experiences of people within these trusted communities.
We developed and continue to refine an ethical framework that always prioritizes the privacy of our communities. Everything we do is guided by the following principles:
As part of our ethical framework, we take the following measures to ensure privacy and anonymity:
“Listening to the voices of rare disease patients is a privilege, and TREND is setting the standard in the way it engages and develops relationships with patient communities.”
– Technology Ethics Leader