How we work

We turn the conversations of people who have rare, chronic, and emerging diseases and their caregivers/care partners into actionable insights through our proprietary evidence-accelerator approach. Above all, we prioritize the privacy and trust of every community member.

Our process

Trusted, invite-only partnerships

We establish trusted, long-term partnerships with invite-only online communities formed organically by people affected by rare, chronic, and emerging diseases. To date, we have partnered with more than 50 communities spanning a range of disease states and symptoms.

See TREND’s impact on the Hypoxic Ischemic Encephalopathy (HIE) community »

Proprietary analytics

We harness machine learning and natural language processing techniques with Krystie™, our proprietary analytics engine that captures the perspectives and experiences of people within these trusted communities.

Evidence acceleration

We find insights on disease impact and unmet needs. Our community voice report and other real-world evidence can be leveraged for many different audiences and objectives.


Ethical Framework

We developed and continue to refine an ethical framework that always prioritizes the privacy of our communities. Everything we do is guided by the following principles:

As part of our ethical framework, we take the following measures to ensure privacy and anonymity:

“Listening to the voices of rare disease patients is a privilege, and TREND is setting the standard in the way it engages and develops relationships with patient communities.”

– Technology Ethics Leader


News & Events
February 7, 2024
Recently, Meta quietly released an update announcing that, effective April 22, 2024, it would discontinue 3rd party access to group…
News & EventsReal World Evidence
November 9, 2023
PHILADELPHIA, November 09, 2023 – TREND Community, a digital health analytics company that turns the conversations of rare, chronic, and emerging…