How we work

We turn the conversations of people who have rare, chronic, and emerging diseases and their caregivers/care partners into actionable insights through our proprietary evidence-accelerator approach. Above all, we prioritize the privacy and trust of every community member.

Our process

Trusted, invite-only partnerships

We establish trusted, long-term partnerships with invite-only online communities formed organically by people affected by rare, chronic, and emerging diseases. To date, we have partnered with more than 50 communities spanning a range of disease states and symptoms.

See TREND’s impact on the Hypoxic Ischemic Encephalopathy (HIE) community »

Proprietary analytics

We harness machine learning and natural language processing techniques with Krystie™, our proprietary analytics engine that captures the perspectives and experiences of people within these trusted communities.

Evidence acceleration

We find insights on disease impact and unmet needs. Our community voice report and other real-world evidence can be leveraged for many different audiences and objectives.


Ethical Framework

We developed and continue to refine an ethical framework that always prioritizes the privacy of our communities. Everything we do is guided by the following principles:

As part of our ethical framework, we take the following measures to ensure privacy and anonymity:

“Listening to the voices of rare disease patients is a privilege, and TREND is setting the standard in the way it engages and develops relationships with patient communities.”

– Technology Ethics Leader


News & Events
August 30, 2023
TREND Community was honored to lead several talks at the recent World Orphan Drug Congress USA 2023 on May 23,…
Featured StoriesNews & Events
August 23, 2023
This month’s Employee Spotlight is on TREND Community’s Product Manager, Tim McLerran, DO. Tim blends his passion for improving the…