On Friday January 21st TREND Community launched its first Real-World Data Consortium in partnership with the gout community. Stories about the lived experiences of people with medical conditions can be an incredibly powerful tool to raise awareness. When spoken and heard, these stories can be instrumental in defining care, supplement diagnostic tools, and open doors for an improved quality of life. The great news is that a mountain of first person stories, comments, and conversations already e...
Our newest CVR is here. We would like to thank the SLC6A1 Family Support Group for providing access to the data used to create this report. Read the full CVR now!...
Our newest Community Voice Report (CVR) is here. We thank the Chronic Urticaria Support Group for providing access to the data used to create this report. Read the full CVR below. ...
Our newest Community Voice Report (CVR) is here. We thank CPVT Kids & Families Sudden Death Arrhythmia for providing access to the data used to create this report. Read the full CVR below....
Data are the future’s most important resource. Like oil, data have to undergo a lot of refinement before becoming useful to the end consumer....
Our newest Community Voice Report (CVR) is here. We thank Craniopharyngioma Group for providing access to the data used to create this report. Read the full CVR below....
Stay up to date with our posts.
Subscribe to our newsletter now!
