Philadelphia, Pa — September 22, 2021 — Today, TREND Community announced a collaboration with Takeda Pharmaceutical Company Limited (“Takeda”) to advance their shared commitment to fighting for rare disease patient communities and bringing treatments to patients faster. By using TREND Community’s analytics engine, partners can make novel discoveries from patient- and caregiver-voice data that could positively impact initiatives in rare-disease focused areas.
To this end, Takeda and TREND are launching an initiative with the Narcolepsy community (co-sponsored with Harmony Bioscience). Real world conversation data in this disease area will be analyzed and shared to explore how real-life stories and shared experiences have the potential to enhance understanding of the impact of disease on daily life and current unmet needs of the patient community.
“Takeda is committed to bringing better health and a brighter future to people worldwide through leading innovation in medicine,” said David Zuckerman, Digital Health Partnerships Lead, Takeda. “We are impressed by TREND Community’s transparent and respectful approach to real-world data generation and are excited to explore how their powerful analytics engine can extract meaningful information and insights to benefit patients and caregivers.”
Stakeholders throughout the pharmaceutical industry have embraced the idea of patient- and caregiver-driven insights playing a larger role in drug development in a variety of ways. This partnership is aimed at harnessing and integrating the power of this collective voice in a way that has real impact on outcomes.
“Patient and caregiver conversations can reveal insights into health conditions that even our most qualified doctors and scientists couldn’t possibly know. These valuable insights are a critical part of our understanding of diseases. We are excited to partner with Takeda, a true champion for rare disease patients, to advance their medical-product development and find solutions to improve the quality of life for those living with rare diseases,” said Maria Picone, Co-Founder and CEO, at TREND Community.
The MassChallenge HealthTech program matches high-impact, digital health startups with industry-leading Champion partners to collaborate on demonstration projects and strategic initiatives that help address some of the healthcare sector’s most intractable challenges.
About TREND Community:
TREND community is a digital health analytics company founded by the parents of a child diagnosed with a rare genetic disorder (Prader-Willi syndrome). TREND Community’s mission is to inspire solutions that accelerate treatment discovery and improve the quality of life for people living with rare and underserved diseases. Their innovative technology analyzes social media conversations to understand diseases from patient and caregiver perspectives.
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Communication Coordinator, at TREND Community firstname.lastname@example.org
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