Philadelphia, Pa — September 22, 2021 — Today, TREND Community announced a collaboration with Takeda Pharmaceutical Company Limited (“Takeda”) to advance their shared commitment to
Click here to watch the video. Rare Disease Week on Capitol Hill officially starts today, and an incredible group of people will come together to
When the quest for good clinical data is arduous, researchers and drug developers often contract tunnel vision. Certain endpoints are established and analysis begins, the
Over the last year, the kinds of clinical trials that precede a drug’s approval have been in the headlines more than ever. The way in
TREND Community, RARE Revolution Magazine and RARE Youth Revolution are excited to release findings from our first Rare Youth Survey. The purpose of this survey
While research on sleep in rare disease is limited, TREND’s social listening is finding issues related to sleep to be the topic of many conversations
Our newest Community Voice Report is here. Thank you to everyone who participated. We hope this work will help accelerate the pace of treatment discovery
As of late, it has been hard for us to write about anything other than COVID-19. The pandemic is unprecedented, and for any healthcare-related organization
Our newest Community Voice Report was made in collaboration with the Global Pericarditis Support Group. Thank you to everyone who participated. TREND Community Voice –
TREND Community, RARE Revolution Magazine and RARE Youth Revolution are excited to announce a joint partnership to better understand the perspectives and needs of children
