Anyone with experience in drug development understands the importance of reliable data. For stakeholders at all stages of all pipelines, information is like gold. The
In February 2020, we presented a poster at NIH Day during Rare Disease Week on Capitol Hill titled: Insights From Closed Social Networks Advance the
Our newest Community Voice Report was made with the help of an awesome international community. Thank you to everyone who participated. TREND Community Voice –
TREND is very excited to have contributed to Kiniksa’s application for Breakthrough Therapy designation, which was awarded by the FDA for rilonacept for the treatment
Individualized drug development is becoming more feasible on a larger scale as a result of new technologies, which could mean great things for rare disease
Overview October 24, 2019 – TREND Community announces its newest Health Initiative, done in partnership with The Chion Foundation, and aimed at understanding how narcoleptic
Our CEO, Maria Picone, speaks with Karen Jagoda of the Empowered Patient Podcast about harnessing community, collaboration, and AI to improve patient and caregiver quality
The GM1 & GM2 Tanganil Health Initiative was created in collaboration with the National Tay-Sachs and Allied Diseases Association (NTSAD) and the Cure Tay-Sachs Foundation
As part of the GM1 & GM2 Tanganil Health Initiative, TREND analyzed the conversations shared in a private Facebook group created as an open forum
Our newest Community Voice Report involved some inspiring patients and caregivers, and we are pleased to share our CVR on Prader-Willi Syndrome. We’d like to
