TREND Releases New Prader-Willi Syndrome Community Voice Report

Sefton Eisenhart
Sefton Eisenhart

Our newest Community Voice Report involved some inspiring patients and caregivers, and we are pleased to share our CVR on Prader-Willi Syndrome. We’d like to extend our thanks to everyone who participated.

TREND Community Voice – Prader-Willi Syndrome – August 2018 – V1.1

TREND analyzed a private Facebook group created in 2013 by caregivers of children with PWS as a place for shared conversations and questions about disease management.

To read about the insights we uncovered, take a look at the CVR (totally free) here.