TREND Releases New Prader-Willi Syndrome Community Voice Report

Picture of Sefton Eisenhart
Sefton Eisenhart

Our newest Community Voice Report involved some inspiring patients and caregivers, and we are pleased to share our CVR on Prader-Willi Syndrome. We’d like to extend our thanks to everyone who participated.

TREND Community Voice – Prader-Willi Syndrome – August 2018 – V1.1

TREND analyzed a private Facebook group created in 2013 by caregivers of children with PWS as a place for shared conversations and questions about disease management.

To read about the insights we uncovered, take a look at the CVR (totally free) here.