Our newest Community Voice Report involved some inspiring patients and caregivers, and we are pleased to share our CVR on Prader-Willi Syndrome. We’d like to extend our thanks to everyone who participated.
TREND Community Voice – Prader-Willi Syndrome – August 2018 – V1.1
TREND analyzed a private Facebook group created in 2013 by caregivers of children with PWS as a place for shared conversations and questions about disease management.
To read about the insights we uncovered, take a look at the CVR (totally free) here.