TREND Community’s Report on Understanding the Mental Health Impact for People Living With Scleroderma Using Real-World Evidence: A Social Media Analysis PHILADELPHIA, July 7, 2023
When I was nine years old, I woke up one day with heavy swelling in my face. At first it was sporadic, but when fourth
TREND Community is honored to present two posters at the World Orphan Drug Congress USA 2022 on July 11-13 in Boston, MA. These two posters*
As a parent, the months before the birth of a child can be full of wonder, excitement, and apprehension. The health of the mother and
To kick off our “Sleep in Rare” Evidence Accelerator, TREND Community presented our poster titled “Extracting Real-World Insights From Social Media to Understand Narcolepsy and
On Friday January 21st TREND Community launched its first Real-World Data Consortium in partnership with the gout community. Stories about the lived experiences of people
In October 2021, TREND Community, in collaboration with Kiniksa Pharmaceuticals Corp and Dr. Chadi Alraies (Detroit Medical Center) presented a poster at the NORD Rare
Dear Community, Despite some setbacks, disappointments, and unforeseen challenges, 2021 was a year of unprecedented growth for TREND. To kick-off off the year, we matched
Reading between the lines…TREND Community Voice Report World Narcolepsy Day 2021 was a day to celebrate. Hundreds of people with narcolepsy and their support members
Narcolepsy is a rare disease that affects 3 million people worldwide. People living with narcolepsy can experience significant disruptions in their daily routines that make
