The GM1 & GM2 Tanganil Health Initiative was created in collaboration with the National Tay-Sachs and Allied Diseases Association (NTSAD) and the Cure Tay-Sachs Foundation
As part of the GM1 & GM2 Tanganil Health Initiative, TREND analyzed the conversations shared in a private Facebook group created as an open forum
Our newest Community Voice Report involved some inspiring patients and caregivers, and we are pleased to share our CVR on Prader-Willi Syndrome. We’d like to
As mother day approaches, one of our TREND Community members reminded us today that rare disease can have a huge impact on the mother/child relationship.
As part of the implementation of PDUFA VI and 21st Century Cures, the FDA is continuing to develop guidance to enable more widespread usage of
capturing the patient perspective on living with congenital rubella syndrome Overview February 1, 2018 – TREND Community is excited to announce The CRS Patient Voice
Health Initiative Overview FARA partnered with TREND Community to generate evidence for their Patient-Focused Drug Development Meeting with FDA. TREND Community performed an analysis of
Note: The following Health Initiative announcement was written in collaboration with The Chion Foundation (chionfoundation.org). BACKGROUND While originally identified as a key immunological molecule in
TREND Exploration Series June 2016 – TREND is excited to announce the AS Diet Initiative to explore the benefits of nutrition therapy for Angelman Syndrome
A review of the Trend Community PWS Diet InitiativePublished July 19, 2016A collaboration with The Charlie Foundation for Ketogenic Therapieshttps://www.charliefoundation.org/explore-ketogenic-diet/explore-3/white-papers
