Analytics and the Future of Disease Understanding
Sefton Eisenhart
January 7, 2021
In 2021, big data play a role in nearly everything we do. We might not know it, but companies around the world are collecting data
Blog Category:
Real World Evidence
Cross-Condition Analysis
Sefton Eisenhart
November 20, 2020
When a rare disease community is working to find a treatment, it’s easy to fall victim to tunnel vision. Multiple parties are always involved. Coordination
TREND Community Releases New Craniopharyngioma Community Voice Report
Maria Picone
November 5, 2020
Our newest Community Voice Report (CVR) is here. We thank Craniopharyngioma Group for providing access to the data used to create this report. Read the
TREND Community and RARE Revolution Magazine Partner on New Survey Regarding Mental Health
Sefton Eisenhart
October 22, 2020
In a continued effort to better understand the perspectives and needs of children and young adults living with rare disease, TREND Community and RARE Revolution
TREND Community Releases New HNRNPH2-related Disorders Community Voice Report
Sefton Eisenhart
October 1, 2020
Our newest Community Voice Report (CVR) is here. We thank the Yellow Brick Road Project for providing access to the data used to create this
TREND Community Releases New Metastatic Breast Cancer Community Voice Report
Sefton Eisenhart
September 24, 2020
Our newest Community Voice Report (CVR) is here. Thank you to BreastCancer.org and everyone who participated. We hope this work will help accelerate the pace
TREND Community Releases New COVID-19 Community Voice Report
Sefton Eisenhart
September 10, 2020
Our newest Community Voice Report is here. Thank you to everyone who participated. We hope this work will help accelerate the pace of treatment discovery
TREND Community Releases New Barth Syndrome Community Voice Report
Sefton Eisenhart
August 27, 2020
Our newest Community Voice Report was made in collaboration with the Barth Syndrome Family Chat Group. Thank you to everyone who participated. TREND Community Voice
TREND Community Releases Volume 2 of Pericarditis Community Voice Report
Sefton Eisenhart
August 3, 2020
Our newest Community Voice Report was made in collaboration with the Global Pericarditis Support Group. Thank you to everyone who participated. TREND Community Voice –
TREND Community Status Statement
Maria Picone
July 2, 2020
Like so many companies around the world, TREND Community was caught off guard by the COVID-19 virus. We found ourselves bogged down in problems for