Our newest Community Voice Report was made with the help of an awesome international community. Thank you to everyone who participated. TREND Community Voice –
We are deeply saddened by the events of the past week, which are shining a spotlight once again on the racial injustice and systemic inequity
Tomorrow is Rare Disease Day at NIH and TREND Community is excited to unveil one of our most ambitious projects. We collaborated with a number
TREND is very excited to have contributed to Kiniksa’s application for Breakthrough Therapy designation, which was awarded by the FDA for rilonacept for the treatment
Artificial intelligence has long been synonymous with science-fiction. Some people see the capabilities of AI and are filled with hope at its potential to revolutionize
Rare disease patients and caregivers around the world can feel good about the progress being made by the epidermolysis bullosa (EB) community. EB is a
Individualized drug development is becoming more feasible on a larger scale as a result of new technologies, which could mean great things for rare disease
Individuals living with recurrent pericarditis are living in pain and fear, desperate for a treatment that will return their quality of life. In August 2019,
In April 2019, FDA held a public meeting to obtain patient and caregiver perspectives on the common issues and symptoms between rare diseases with the
The GM1 & GM2 Tanganil Health Initiative was created in collaboration with the National Tay-Sachs and Allied Diseases Association (NTSAD) and the Cure Tay-Sachs Foundation
