TREND Community Releases New Barth Syndrome Community Voice Report

Picture of Sefton Eisenhart
Sefton Eisenhart
Author

Our newest Community Voice Report was made in collaboration with the Barth Syndrome Family Chat Group. Thank you to everyone who participated.

TREND Community Voice – Barth Syndrome – August, 2020 – V1.1

To read about the insights we uncovered, take a look at the CVR (totally free) here.