In a continued effort to better understand the perspectives and needs of children and young adults living with rare disease, TREND Community and RARE Revolution are conducting a second survey. This time the subject matter is more specific and looks to gather information on the mental health of patients.
For so many rare disease community members around the world, the uphill battle of diagnosing and managing an illness is more than a full-time job. It can be easy to forget about mental wellbeing when day-to-day life requires so much effort. We want to shed some much-needed light on this important subject.
To participate in this brief survey, click here.