TREND Community is honored to present two posters at the World Orphan Drug Congress USA 2022 on July 11-13 in Boston, MA. These two posters* use real-world evidence to amplify the voices of the communities represented:
Mapping the Rare Caregiver Journey in Hypoxic-Ischemic Encephalopathy Using Real-World Insights From Social Media
Using Real-World Evidence to Understand the Diagnostic Journey of People Living With Myasthenia Gravis and Its Impact on Mental Health
Understanding the impact of rare diseases on mental health of those with lived experience and their caregivers is the first step towards developing interventions and support strategies.
* (please click the hyperlinks above for the posters and abstracts presented)