Sarah Berkowitz Having narcolepsy is exhausting, literally. Excessive sleepiness, cataplexy, and brain fog are just the symptoms of an invisible disease, compounded by the frustration
View full White Paper here: Living With Fabry Disease: Voices From Young Adults Young adults (YAs) living with Fabry disease (FD) face a unique set
TREND Community’s Report on Sleep and Rare Conditions PHILADELPHIA, October 12, 2023 – TREND Community, a digital health analytics company that turns the conversations of
TREND Community is honored to spotlight Zachary Cline, PhD, as a Data Research Analyst on our team. Zach brings to TREND his background in data
This month’s Employee Spotlight is on TREND Community’s Product Manager, Tim McLerran, DO. Tim blends his passion for improving the lives of those with rare
Living with narcolepsy isn’t easy. A typical morning finds me laying in bed, drifting somewhere between awake and asleep. If left to my own devices,
TREND Community is honored to announce the addition of Jonathan Bui as front-end developer on our team. Jonathan brings his experience with software engineering and
“I’ve never heard of it. Are you sure that’s what the doctor called it?” “I think my neighbor’s aunt has that.” “It’s probably not that
My rare disease diagnostic journey was, in some ways, like many others. In other ways, it was very unique. My father was the first in
“You might have to go on dialysis again—I don’t want to sugarcoat it for you,” my doctor said to me as we spoke in the
