Featured Stories

FDA Approves Pitolisant for Treatment of Narcolepsy

Maria Picone August 15, 2019

Yesterday, Harmony Biosciences announced FDA Approval Of WAKIX (pitolisant), A First-In-Class Medication For The Treatment Of Excessive Daytime Sleepiness In Adult Patients With Narcolepsy. Read

TREND Community Member Spotlight: Rick Karl

Maria Picone June 15, 2018

In recognition of Father’s Day, TREND Community honors community member Rick Karl. Rick is the president of the Cure for Tay-Sachs organization (www.curetaysachs.org) which has

Living With Congenital Rubella Syndrome: Survivor Stories

Maria Picone February 28, 2018

Sebastian’s Story

Maria Picone February 27, 2018

Press Release: TREND Community is proud to announce our new Advisory Board Members, Wendy White and E. Robert Wassman, both accomplished experts in the rare disease field.

Maria Picone February 27, 2018

WENDY WHITEAdvisor Wendy White is an innovative leader working for over 20 years in Rare Disease at the intersection of advocacy, technology and business. She

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Featured Stories

FDA Approves Pitolisant for Treatment of Narcolepsy

TREND Community Member Spotlight: Rick Karl

Living With Congenital Rubella Syndrome: Survivor Stories

Sebastian’s Story

Press Release: TREND Community is proud to announce our new Advisory Board Members, Wendy White and E. Robert Wassman, both accomplished experts in the rare disease field.

Case’s Story

Max’s Story

Naveen’s Story

Siobhan’s Story

Tucker’s Story

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