TREND Community, RARE Revolution Magazine and RARE Youth Revolution are excited to release findings from our second Rare Youth Survey, all about the mental health of young people with rare diseases.
The purpose of this survey was to gather insights on how having a rare disease can both directly and indirectly impact the mental health of a young person. By gaining a better understanding we hope to be able to find better solutions and provide meaningful support.
“Unlike the previous survey, participants were not prompted with answers for the questions. Instead, young respondents were given a blank space to write their own answers, so they were able to detail their own unique experience.”
We displayed their answers in the form of word clouds. All data has been anonymized. You can see the results below: