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Viewpoints
Sleep in Rare Evidence Accelerator
September 9, 2022
Tell your story. Shed light on rare disease.TREND Community is a digital health analytics company with a bold vision to…
Real World EvidenceViewpoints
Reading Between the Lines
September 24, 2021
Reading between the lines…TREND Community Voice ReportWorld Narcolepsy Day 2021 was a day to celebrate. Hundreds of people with narcolepsy…
Viewpoints
Parenting a Child on the Keto Diet
April 29, 2021
If you pay attention to ebb and flow of nutrition fads, then you have probably heard about the keto diet.…
Real World EvidenceViewpoints
The Importance of Caregivers
March 11, 2021
Behind many rare disease patients are caregivers who lend support. Some people are lucky enough to have a wide support…
Viewpoints
The Delicate Nature of TREND’s Relationships with Patient Communities
March 4, 2021
When TREND creates a Community Voice Report (CVR) there are dozens of preliminary steps that have to be completed before…
Real World EvidenceViewpoints
Cross-Condition Analysis
November 20, 2020
When a rare disease community is working to find a treatment, it’s easy to fall victim to tunnel vision. Multiple…
News & EventsViewpoints
CRISPR, a Nobel Prize, and the Future of Gene Editing
October 15, 2020
This year’s Nobel Prize in Chemistry was awarded to two scientists, Dr. Emmanuelle Charpentier of the Max Planck Unit for…
Viewpoints
Reflection on the Word “Patient”
October 8, 2020
In a medical context, the word “patient” conjures different images and emotions for every person that uses it. For some,…
Viewpoints
The Pros and Cons of Dr. Google
August 21, 2020
Consensus is hard to come by in 2020. A growing distrust of institutions has coalesced with an unprecedented amount of…