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Featured StoriesReal World Evidence
November 7, 2022
When I was nine years old, I woke up one day with heavy swelling in my face. At first it…
Featured StoriesNews & EventsReal World Evidence
July 7, 2022
TREND Community is honored to present two posters at the World Orphan Drug Congress USA 2022 on July 11-13 in…
Featured StoriesReal World Evidence
April 29, 2022
As a parent, the months before the birth of a child can be full of wonder, excitement, and apprehension. The…
Real World Evidence
March 2, 2022
To kick off our "Sleep in Rare" Evidence Accelerator, TREND Community presented our poster titled "Extracting Real-World Insights From Social…
Featured StoriesReal World Evidence
January 28, 2022
On Friday January 21st TREND Community launched its first Real-World Data Consortium in partnership with the gout community. Stories about…
News & EventsReal World Evidence
January 3, 2022
Dear Community,Despite some setbacks, disappointments, and unforeseen challenges, 2021 was a year of unprecedented growth for TREND.To kick-off off the…
Real World Evidence
January 3, 2022
In October 2021, TREND Community, in collaboration with Kiniksa Pharmaceuticals Corp and Dr. Chadi Alraies (Detroit Medical Center) presented a…
Real World EvidenceViewpoints
September 24, 2021
Reading between the lines…TREND Community Voice ReportWorld Narcolepsy Day 2021 was a day to celebrate. Hundreds of people with narcolepsy…
Real World Evidence
September 22, 2021
Narcolepsy is a rare disease that affects 3 million people worldwide. People living with narcolepsy can experience significant disruptions in…
Real World Evidence
July 29, 2021
TREND Community believes that valuable and actionable insights can be gained from the community perspectives and life experiences shared throughout…