Sabina Kineen – Journey with Fabry
My rare disease diagnostic journey was, in some ways, like many others. In other ways, it was very unique. My father was the first in
My rare disease diagnostic journey was, in some ways, like many others. In other ways, it was very unique. My father was the first in
“You might have to go on dialysis again—I don’t want to sugarcoat it for you,” my doctor said to me as we spoke in the
TREND Community is honored to introduce Andrew Wright, a person living with myotonic dystrophy type 1 (DM1). Like all of those living with rare and
TREND Community is honored to announce that Monica Converse has joined our team as Medical Writer. Monica brings experience from her work as a science
TREND Community is honored to announce that Angeni Cordova has joined our team as Project Manager. Angeni hails from Edison, New Jersey, and brings to
TREND Community is honored to announce the addition of Enming Zheng as a data scientist on our team. Enming received her Bachelor of Science in
When I was 19 years old, I liked going on late-night Walmart runs for fun. One particular night, I was craving junk food, so I
TREND Community is proud to announce that Dr. Wei Li is joining our team as Chief Scientist. Dr. Li brings experience and expertise to our
My name is Justice Faith and I am 17 years old and a senior in high school. I have…Prader-Willi syndrome,Narcolepsy with cataplexy,Scoliosis,Gastroparesis, andCentral adrenal insufficiency
Being A Person With Narcolepsy. Being Matt Horsnell. The sounds of dumbbells crashing and treadmills whirring served as the background track as the doctor confirmed