My name is Justice Faith and I am 17 years old and a senior in high school. I have…Prader-Willi syndrome,Narcolepsy with cataplexy,Scoliosis,Gastroparesis, andCentral adrenal insufficiency
Being A Person With Narcolepsy. Being Matt Horsnell. The sounds of dumbbells crashing and treadmills whirring served as the background track as the doctor confirmed
1 in 10,000. The odds of being struck by lightning in a lifetime or finding a four-leaf clover. It also just so happens to be
In February 2020, TREND presented a poster at NIH Day during Rare Disease Week on Capitol Hill titled: Insights From Closed Social Networks Advance the
In the coming months we will introduce you to some of the leaders who are amplifying their community’s voices through their partnership with TREND. This
TREND Community, RARE Revolution Magazine and RARE Youth Revolution are excited to announce a joint partnership to better understand the perspectives and needs of children
In April 2019, FDA held a public meeting to obtain patient and caregiver perspectives on the common issues and symptoms between rare diseases with the
TREND Community aspires to create a social media platform focused on the needs of rare and chronic disease communities. These communities use social media to
