The Importance of Caregivers
Sefton Eisenhart
March 11, 2021
Behind many rare disease patients are caregivers who lend support. Some people are lucky enough to have a wide support system, with friends, family, and
Blog Category:
Viewpoints
The Delicate Nature of TREND’s Relationships with Patient Communities
Sefton Eisenhart
March 4, 2021
When TREND creates a Community Voice Report (CVR) there are dozens of preliminary steps that have to be completed before we can start our analysis.
Cross-Condition Analysis
Sefton Eisenhart
November 20, 2020
When a rare disease community is working to find a treatment, it’s easy to fall victim to tunnel vision. Multiple parties are always involved. Coordination
CRISPR, a Nobel Prize, and the Future of Gene Editing
Sefton Eisenhart
October 15, 2020
This year’s Nobel Prize in Chemistry was awarded to two scientists, Dr. Emmanuelle Charpentier of the Max Planck Unit for the Science of Pathogens in
Reflection on the Word “Patient”
Sefton Eisenhart
October 8, 2020
In a medical context, the word “patient” conjures different images and emotions for every person that uses it. For some, it signifies bravery in the
The Pros and Cons of Dr. Google
Sefton Eisenhart
August 21, 2020
Consensus is hard to come by in 2020. A growing distrust of institutions has coalesced with an unprecedented amount of information, giving rise to a
The Many Roles of Rare Parents
Sefton Eisenhart
July 9, 2020
In the world of rare disease, many of the biggest advancements occur in large part due to the work of the parents of patients. When
Changes in the Rare Disease Community Because of COVID
Sefton Eisenhart
April 30, 2020
Quarantining in place has left the world facing a lot of challenges, but for members of the rare disease community, the situation is often more
How TREND Is Moving Forward
Sarah M Inoue
April 23, 2020
As COVID-19 continues to spread around the world, we are realizing more and more how much we don’t know about the illness. The disease is
Defined by What We Don’t Know
Lucy Steinert
April 9, 2020
We have seen coronaviruses before, but we still don’t know enough about COVID-19. We don’t have a set of drugs or therapies. We are only