Rare Disease Week on Capitol Hill officially started yesterday, and an incredible group of people arrived in Washington to drive progress and expand support. There
Rubella is an infection that was misunderstood for much of its history. It was initially thought to be a type of measles. In the early
It is early January, and if you are like most people, you probably have some things you want to accomplish in 2020. Resolutions are easy
TREND Community aspires to create a social media platform focused on the needs of rare and chronic disease communities. These communities use social media to
Growing up, we never celebrated Mother’s Day because my mother’s birthday was on or near the day and because, as a family, we felt an
As part of the implementation of PDUFA VI and 21st Century Cures, the FDA is continuing to develop guidance to enable more widespread usage of
In light of recent reports concerning privacy violations of millions of users’ Facebook data, patients and caregivers are telling us that they are nervous to
Note: The following viewpoint was written in collaboration with The Chion Foundation (chionfoundation.org). BACKGROUND Traditionally, drugs that are approved by the FDA must go through
TREND EXPLORATION SERIES Trend Community is excited to announce our 1st Exploration. Currently, our focus is on environmental intervention in Prader‐Willi Syndrome and its co‐morbidities.
