Matthew Horsnell

Matthew Horsnell

Community Director

Matt is the father of 3 children living with type 1 narcolepsy (narcolepsy with cataplexy) As Community Director, he amplifies and cultivates insights from the voices of the rare disease groups. Matt also consults on actigraphy solutions for the sleep community using wearable technology. From scientific research to artwork, poetry, and strength, he is recognized throughout the community as a “narcolepsy renaissance man.” Matt serves as a facilitator for Wake Up Narcolepsy online small groups and is a leading patient advocate in narcolepsy, focusing on mental health awareness and legislative efforts. He also has the longest hashtag in narcolepsy: #worldsstrongestpersonhavingnarcolepsywithcataplexy