Blog Category:

Viewpoints

Breaking Down the Data Silos

Last week at Rare Disease Day at NIH, the conversation turned—once again—to data silos. The speakers were thoughtful, experienced, and deeply committed. And yet, I

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Tuning the Receiver

In AI, distribution is everything. Skills are changing the game — programs written in plain English that give agents real capabilities. No app store. No

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Reading Between the Lines

Reading between the lines…TREND Community Voice Report World Narcolepsy Day 2021 was a day to celebrate. Hundreds of people with narcolepsy and their support members

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The Importance of Caregivers

Behind many rare disease patients are caregivers who lend support. Some people are lucky enough to have a wide support system, with friends, family, and

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