Blog Category:


Reading Between the Lines

Reading between the lines…TREND Community Voice Report World Narcolepsy Day 2021 was a day to celebrate. Hundreds of people with narcolepsy and their support members

Read More »

The Importance of Caregivers

Behind many rare disease patients are caregivers who lend support. Some people are lucky enough to have a wide support system, with friends, family, and

Read More »

Cross-Condition Analysis

When a rare disease community is working to find a treatment, it’s easy to fall victim to tunnel vision. Multiple parties are always involved. Coordination

Read More »